Tuesday, October 1, 2013

A Sister's Point of View

Today is October 1st, which means Down syndrome Awareness month is upon us. For many people, that's not even on the top ten of what October means to them (Halloween, breast cancer, fall, etc). For many people, Down syndrome Awareness month is something to shrug at.

Not for me.

My very first memory is when my parents went to the hospital to have my brother. I can't tell you the specifics of that day, when my parents left, if they were nervous or excited or if they even had a feeling that their lives were going to be incredibly different when they left that hospital.

I don't remember if they ever had "the talk" with me, about how it would take John longer to do things, that he might need more help with walking, talking, feeding himself. I really don't know.

All I know is that on March 23, 1990 a wonderful person came into my life. This person, just by being himself, by being my little brother, changed my life in such a wonderful way, made me a stronger person, showed me how to love, unconditionally. I don't know what or who I might've been without him, but I know, I KNOW that my life is so much more than it ever would have been. Just by being his big sister.

I'm sure that there are parents, right now, who have just been told that their baby has Down syndrome. They may have other children and may worry that their baby with Ds may take away time from their "normal" children. They may worry that their "normal" children may lose friends, may have a harder life than if their baby didn't have Ds.  I would like to tell those parents, those siblings that it IS a different life. Not unfullfilling, or horrible, or inadequate. Just different.

1 comment:

  1. I love reading what you write about John. I didn't know that October was Down Syndrome month, but I'm glad I do now. Lupus Awareness month used to be October and it irked me since it is Breast Cancer Awareness month and it's difficult for anyone else to get attention in October. I'll spread the word and I hope you'll write a little something for me :-)


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